Health and Healthy Living
Title: |
Advocates for Youth |
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Link: |
http://www.advocatesforyouth.org/index.htm |
Description: |
Advocates
for Youth is dedicated to creating programs and advocating for policies
that help young people make informed and responsible decisions about
their reproductive and sexual health. Advocates for Youth provides
information, training, and strategic assistance to youth-serving
organizations, policy makers, youth activists, and the media in the
United States and the developing world. |
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Title: |
American Association on Health and Disability |
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Link: |
http://aahd.webchoices.us/page.php |
Description: |
The
American Association on Health and Disability's (AAHD) mission is to
support health promotion and wellness initiatives for people with
disabilities at the federal, state, and local level; to reduce the
incidence of secondary conditions in people with disabilities; and to
reduce health disparities between people with disabilities and the
general population. |
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Title: |
Healthcare Transition Training |
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Link: |
http://hctransitions.ichp.ufl.edu/ddcouncil |
Description: |
Healthcare
transition is a process that takes time and planning. This Web site has
been developed as a learning resource for individuals who are either in
the process of transition, or about to be, and provides transition
training.
Source: The Florida Developmental Disabilities Council, Tallahassee, FL |
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Title: |
National Women's Health Information Center: Women with Disabilities |
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Link: |
http://www.4women.gov/wwd |
Description: |
The
National Women's Health Information Center (NWHIC) provides useful
information for women with disabilities, caretakers, health
professionals, and researchers. |
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Title: |
What does Health Have to Do with Transition? Everything! |
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Link: |
http://www.ncset.org/publications/viewdesc.asp?id=2967#top |
Description: |
This
brief, from the National Center on Secondary Education and Transition,
provides information on the benefits of and strategies for including
health in the Individualized Education Program (IEP) process. This brief
was written for parents of students in transition, but can easily be
adapted to directly address youth in transition. |
Source: |
EST |
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Title: |
Build Your Own Care Notebook |
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Link: |
http://www.medicalhomeinfo.org/tools/care_notebook.html |
Description: |
The
National Center of Medical Homes Initiatives offers a list of
downloadable forms with which you can build your own Care Notebook. All
Care Notebook forms are made available in both Microsoft Word and Adobe
PDF versions. |
Source: |
EST |
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Title: |
Curriculum on Abuse Prevention and Empowerment (CAPE) |
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Link: |
http://www.wid.org/programs/health-access-and-long-term-services/curriculum-on-abuse
e-prevention-and-empowerment-cape/curriculum-on-abuse-prevention-and-empowerment-cape |
Description: |
CAPE
explores fundamental issues of abuse, best-practices training
approaches, and stories of disabled people confronting and resisting
abuse. CAPE also helps teachers adapt learning activities for use at
disability and senior community events, rehabilitation sessions, schools
and independent living training sessions. CAPE offers learning tools
that appeal to wide audiences, including stories, movies, comic book
scenes, quizzes, and games in formats that learners already regard as
fun and entertaining. CAPE is funded by the National Institute on
Disability Rehabilitation and Research (NIDRR). All of the resources in
this curriculum are available in both English and Spanish. |
Source: |
EST |
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Title: |
Depression and Disability: A Practical Guide |
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Link: |
http://www.fpg.unc.edu/~ncodh/pdfs/depression.pdf |
Description: |
This
booklet, published by the North Carolina Office on Disability and
Health and written by clinical psychologist Dr. Karla Thompson,
addresses basic information about depression, common symptoms and
treatments of depression, and why people with disabilities may be at an
increased risk for depression. It is also available in Spanish:
http://www.fpg.unc.edu/~ncodh/pdfs/depressionsp.pdf. |
Source: |
EST |
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Title: |
Substance Use Among Young Adults With Disabilities |
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Link: |
http://ies.ed.gov/ncser/pdf/20083009.pdf |
Description: |
This
report was released by the National Center for Special Education
Research (NCSER) on May 20, 2008. The report uses data from the National
Longitudinal Transition Study-2 (NLTS2) to answer questions about the
use of alcohol, cigarettes and illegal drugs such as marijuana, cocaine,
and LSD among young adults with disabilities. The report compares
substance use among this population with substance use in the general
population, and compares different disability categories and demographic
groups in substance use and in the receipt of substance abuse
prevention education and services. The NLTS2 is funded by the National
Center for Special Education Research at the Institute of Education
Sciences, US Department of Education. NLTS2 was initiated in 2001 and
has a nationally-representative sample of more than 11,000 students with
disabilities. For further information please contact David Malouf at
202-219-1309 or david.malouf@ed.gov. |
Source: |
EST |
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Title: |
Health Resource Booklets |
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Link: |
http://www.fpg.unc.edu/~ncodh/Publications.cfm |
Description: |
The North Carolina Office of Disability and Health has published several booklets on Health-related topics:
Health Promotion Resource Guide
(http://www.fpg.unc.edu/~ncodh/pdfs/healthpromotionguide.pdf) This guide
provides health educators, service providers, and program planners a
carefully selected collection of resources that address accessibility,
communication, and topic specific health promotion.
Partners in Health Care (English:
http://www.fpg.unc.edu/~ncodh/pdfs/partners.pdf, Spanish:
http://www.fpg.unc.edu/~ncodh/pdfs/partnerssp.pdf) This brochure is
filled with tips for health care providers in promoting the health of
people with cognitive and physical disabilities.
Removing Barriers to Health Care: A Guide for Health Professionals
(http://www.fpg.unc.edu/~ncodh/pdfs/rbhealthcare.pdf) This booklet,
developed by NCODH and the Center for Universal Design at N.C. State
University, walks the health care provider through the process of making
a medical facility physically accessible. It is complete with specific
ADA requirements, picture illustrations, and some helpful tips on
creating accessible environments and services.
Removing Barriers: Tips and Strategies to Promote Accessible
Communication
(http://www.fpg.unc.edu/~ncodh/pdfs/rbtipsandstrategies.pdf) This
booklet is an easy-to-read, quick reference guide that addresses the
basics on ways to effectively communicate and interact with people with
disabilities. |
Source: |
EST |
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Title: |
Healthy and Ready to Work |
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Link: |
http://www.hrtw.org/ |
Description: |
The
Healthy and Ready to Work (HRTW) Web site focuses on understanding
systems, access to quality health care, and increasing the involvement
of youth. It also includes provider preparation plus tools and resources
needed to make more informed choices. |
Source: |
EST |
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Title: |
In the Driver's Seat: A Guide to Self-Directed Mental Health Care |
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Link: |
http://www.hcbs.org/moreInfo.php/doc/2285 |
Description: |
This
guide from the Bazelon Center for Mental Health provides information
and advice necessary for effective self-directed mental health care. A
self-directed program gives individuals flexibility to use money set
aside for health care in new ways to advance the goals of their
individualized plan. This guide uses lists, question-and-answer
sections, and fact sheets to present and organize information on
evaluation, eligibility, financing, and planning a self-directed
program. The guide hopes to stimulate advances in the mental health care
field, and it encourages groups and individuals to speak out for what
could enable people living with mental illnesses the ability to enjoy
"rewarding lives and full community integration." |
Source: |
EST |
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Title: |
Health Transition Videos |
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Link: |
http://video.ichp.ufl.edu/ |
Description: |
The
University of Florida's Institute for Child Health Policy offers
streaming videos about health care transitions. Titles include:
- Talking With Your Doctor
- This is Health Care Transition
- Health Care Transition: College and Beyond
- Health Care Transition: Jim's Story
- Healthy and Ready to Work.
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Source: |
EST |
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Title: |
Transitioning Adolescents to Adult Health Care |
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Link: |
http://www.hscfoundation.org/aboutus/publications/Fact%20Sheet.pdf |
Description: |
The
HSC Foundation, in collaboration with The National Alliance to Advance
Adolescent Health (formerly Incenter Strategies) is pleased to announce
the availability of a new Fact Sheet on the provision of transition
support services in pediatric practices.
This Fact Sheet presents new national data on the transition support
services offered in pediatric practices to adolescents with special
needs and the barriers affecting their availability. The data found that
most pediatric practices do not initiate transition planning early in
adolescence or offer the transition support services identified as
critical for ensuring a smooth transition to adult health care. Gaps in
transition support are due in part to limited staff training; lack of an
identified staff person responsible for transition; financial barriers;
and anxiety on the part of pediatricians, adolescents, and their
parents about planning for their future health care.
The fact sheet is authored by Margaret McManus, Harriette Fox, Karen O'Connor, Thomas Chapman, and Jessie MacKinnon.
Click on the above link to view or download the Fact Sheet. |
Source: |
EST |
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Title: |
Americans Speak on Health Reform: Report on Health Care Community Discussions |
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Link: |
http://www.healthreform.gov/reports/index.html |
Description: |
A
report released by the Department of Health and Human Services,
Americans Speak on Health Reform: Report on Health Care Community
Discussions, summarizes comments from the thousands of Americans who
hosted and participated in Health Care Community Discussions across the
country. The report highlights the need for immediate action to reform
health care. |
Source: |
EST |
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Title: |
Health Jeopardy Game |
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Link: |
http://www.emergingleadersnw.org/doc
cuments/Health_jeopardy_template-1.ppt |
Description: |
Emerging Leaders Northwest has created an online Jeopardy Game to help people learn about their health. Categories include:
-We can work it out
-What's eating you?
-Don't drink the water!
-Good night!
-Take charge of your healthcare
The game gives you the answer, then you must come up with the
correct question. Click on a number to start, continue to click to
reveal the category, then the answer, then the question. When you are
ready for another turn, click on the house on the lower-right side of
the board. |
Source: |
Emerging Leaders Northwest |
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Title: |
Abuse of Children with Cognitive, Intellectual & Developmental Disabilities |
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Link: |
http://www.thearc.org/NetCommunity/Document.Doc?&id=144 |
Description: |
This
document, published by the Arc, contains information on the abuse and
neglect of children with cognitive, intellectual and developmental
disabilities and how to help prevent and report abuse. Clicking on the
above link will open a Microsoft Word document. |
Source: |
EST |
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Title: |
The National Hispanic Family Health Helpline |
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Link: |
http://www.hispanichealth.org/folletos/ |
Description: |
Su Familia (Your Family): The National Hispanic Family Health Helpline
(1-866- SU FAMILIA or 1-866-783-2645)
Su Familia offers Hispanic consumers free reliable and confidential
health information in Spanish and English and helps navigate callers
through the health system. Nationwide resources and local referral
services are provided depending on the need of the caller. Staffed by
bilingual health promotion advisors the helpline provides basic
information on a wide range of health topics.
Using zip code information to search our up-to-date database of over
22,000 providers, health promotion advisors are able to refer consumers
to health care facilities in their community.
To provide consumers with culturally proficient health information,
over 100 Fact Sheets (FAQs) have been developed on a wide array of
health topics, including: infant mortality, cancer and cancer treatment,
cardiovascular disease, child and adult immunizations, diabetes,
HIV/AIDS, mental health issues, Parkinson’s disease, hypertension,
autism, adult and adolescent depression, and more. Fact sheets are
available on the Alliance Web site and over half are available in
Spanish. Click on the above link for the fact sheets in Spanish. |
Source: |
EST |
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Title: |
People with Disabilities Experience Low Health Literacy |
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Link: |
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Description: |
Low
health literacy is a disparity between a patient's ability to
understand medical information and a medical provider's ability to
explain this information clearly. According to the Institute of
Medicine, 90 million Americans have low health literacy, but the
percentage is higher among people with any type of disability and who
are English language learners (ELLs). In two separate studies from
researchers at the University of Missouri, people with disabilities and
ELLs felt their medical providers often did not listen to them, explain
options, or treat them with respect. Few doctors have multi-language
backgrounds, which makes access to healthcare for ELLs more difficult.
Full Story: Health Literacy Lower for the Disabled, United Press International, Nov. 3, 2009.
See Also: Christian Basi, Health Information Not Communicated Well to Minority Populations, MU Researcher Finds, News Bureau University of Missouri, Oct. 29, 2009.
Information provided by:
The Disability Law & Policy e-Newsletter. An electronic
publication of The Law, Health Policy & Disability Center at the
University of Iowa College of Law and
The Burton Blatt Institute at Syracuse University. |
Source: |
EST |
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Title: |
Access To Medical Care For Individuals With Mobility Disabilities |
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Link: |
http://www.ada.gov/medcare_ta.htm |
Description: |
This
19-page publication from the Department of Justice provides guidance
for medical care professionals on the ADA’s requirement to provide
accessible health care to individuals with mobility disabilities and
includes an overview of general ADA requirements, commonly asked
questions, and illustrated examples of accessible facilities,
examination rooms, and medical equipment. |
Source: |
EST |
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Title: |
Medicare & The New Health Care Law - What it Means for You |
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Link: |
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Description: |
Medicare
beneficiaries will soon receive information in the mail about the
immediate benefits they may see from the new the Affordable Care Act.
The first benefit that several million Medicare beneficiaries will
receive is a one-time check for $250, if they enter the Part D donut
hole and are not eligible for Medicare Extra Help. The donut hole, or
coverage gap, is the period in the prescription drug benefit in which a
beneficiary pays 100 percent of the cost of their drugs until they hit
the catastrophic coverage. Next year, all beneficiaries who enter the
gap will get a 50 percent discount for covered brand name Part D drugs.
Also beginning next year, Medicare beneficiaries will get preventive
care services like colorectal cancer screening and mammograms without
cost-sharing, in addition to an annual wellness visit. A fact sheet
about Medicare and the new health care law is available in English and Spanish. |
Source: |
EST |
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Title: |
HealthCare.gov |
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Link: |
http://www.healthcare.gov/index.html |
Description: |
The U.S. Department of Health and Human Services has announced a new website called HealthCare.gov.
This new tool lets consumers take control of their health care by
connecting them to information about quality, affordable health care
coverage.
HealthCare.gov is the first central database of health coverage options--from Medicare to the new Pre-Existing Conditions Insurance Plan, with information from more than 1,000 private insurance plans.
HealthCare.gov answers questions that relate to people with disabilities and health care, and also has information about insurance plans and community services in every state. Take a video tour of this new website. |
Source: |
EST |
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